5hrs in radiology. I'm exhausted and so is tiny man. They did a small bowel follow thru and a gastric emptying study. No obstruction. They put the isotopes and liquid into his G tube and it started immediately pouring out the stoma. Ran the test with stuff pouring everywhere. Came back up and he started gagging and coughing up bile and isotopes. HUMPH.
He screamed the entire time they put stuff thru his J and screamed until he pooped 1hr and 15min later. His nurse had to be called to come give him pain meds.
his surgeon who we have waited 48hrs to see came while we were gone. They are ...doing surgery tomorrow at noon. Also doing his hearing test while in surgery. They are concerned about his intestinal pain and stomach not working. We can't seem to put anything thru either.
the big concern is keeping the IV until surgery tomorrow. We are exhausted and so is tiny man. Everyone is confused and nobody knows whats happening and what to do next.
****UPDATED 9pm doc came by and we had a long talk. Eli is officially moved into the hospital long term. Tomorrow after surgery we will go straight to PICU. He has pneumonia and is coughing up puss and such. Who knows when we will hopefully move back into Peds in a long term room. I'm trying to grasp all of this, but it's not quite fitting in my head.
3 comments:
Found your blog through Allie and Jodi over at Allie's Abnormal Appetite, I am praying for you guys. I know how scary it can be.
Heather - I'm sorry to hear that Eli will now be in the hospital long term. The good thing is that is the best place he can be. Sounds like his doctors are finally getting things organized and getting a plan for him. I have been praying continually for Eli and also for you and Bob. Thank you for keeping us updated and we will continue to pray for all of you!
Just wanted to let you know that we're praying and have asked our church to pray as well.
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