Thursday, December 31, 2009

wow i cant believe that another year is ending. its almost been a blur, especially here at the end.
i hate that the year is ending in such a limbo state for us. i feel like there are so many unresolved things and there is nothing i can do about it. with eli being so sick our whole world has been put on hold. my only resolution for 2010 is to tie up loose ends.

in other eli gained 1 oz. his weight this morning was 6lbs 2oz. the new meds seem to be slowly kicking in so our weight should slowly start going up. last night we missed a feeding and got off scheduale by almost 3 hours. i was completely freaked out by this and felt so guilty. today ive made sure to stay on feeding scheduale and he hasnt been awake and hungry enough to make up time but hes done well enough not to fall behind.
for a special nurse out there reading...hes still coming up with creative was to hide his meds and each time takes 15 to 20 minutes, hes peed on his dad during 3 scale times, hes working on his "weak suck", and he cried yesterday once so hold off on neuro! we miss you!

happy new year!!!!

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