His GI doc came in the afternoon and decided to put the NG tube back in. When he has the tube he doesn't choke as much and then we can add some extra breastmilk to try and help get his weight up quicker. He's already tried to pull it out twice since putting it back in. He's nursing a bit better this evening, so we are hoping to see some weight gain tomorrow morning.
They've had a heck of a time getting in touch with the ENT and finally got in touch with him late today. He's supposedly coming tomorrow to do the scope. Really hoping to get some answers.
Mr Eli is having a bit of a grouchy evening so not sure how the night will go.
More updates tomorrow with photos!
Well we had the Swallow Study this morning. It isn't good. He is aspirating as he eats, even with the thickener. They are also having the ENT and the GI doc both come and run scopes. We have to figure out what's going on and how to fix it. He gained weight yesterday but barely. 5lbs 13.7oz
I'm beyond frustrated and we get so much conflicting info and I'm just losing my mind. We also have major cabin fever and are getting pretty darned lonely.