quick update and i will get full info up later today.
eli is getting worse and worse. met with the pulmonologist yesterday. she's going to be schedualing a 24hr minimum hospital stay for the flexible and rigid broncoscopy and endoscopy. also pushing for sleep study sooner.
today is the local genetic counselor with video phone conferencing with the genetic doctor in Louisiana. I'm excited and nervous. maybe we will finally get a full diagnosis. maybe we won't get shit and we'll just be told we have no idea what's going on and what's causing all of this, we have no answers, but we promise to keep trying.
humph i'm so damn tired.
more updates later today.