Monday, August 23, 2010

Monday Afternoon

Bob~ His new work scheduale started yesterday. It's definitely going to take some getting used to. We were both definitely tired this morning. He's trying to get into the new work scheduale routine and school that started this last week as well.
Me~ I'm busy with the kids and school. Not much changes with me. I go for my 6 week post op appt on Wednesday and I'm ready to be completely released back to normal life. Other than that it's same old same old for me!
Emily~ She's enjoying school, mostly. The work is way to easy for her and she's super bored. She's having to take her own books and such to school because she's past the level that they have available. It will take 4 to 6 weeks for them to finish getting her fully tested for the gifted program, but then she can again hopefully be challenged a bit at school. Other than that she's doing well. We have all the lovely preteen issues going on, but we knew that was coming soon.
Jace~ He's enjoying being back in school as well. He has already made quite a few friends, and has already been invited to a birthday party this coming weekend. He's excited about that. He had his 1st spelling pre-test today, and struggled a bit, so he'll be spending some afternoons working on that.
Ben~ He's doing pretty good with school. The work has been pretty easy for him so far. He's struggling a bit with the busy afternoon at school, and is falling asleep each day on the bus. Luckily the neighbor girl wakes him up when they get to our stop and walks home with him. His swing is on backorder, so won't be in for approximately 30 days. He's looking forward to getting it. Then he can safely swing and hang upside down!
Ari~ She's bored. Super duper bored. She's not quite sure what to think about everyone being gone so much. We are going to have to look into moms day out program or something so that she can have a chance to be around kids her age!
Eli~ Tiny man is still sick. He's pretty miserable. So far he's lost 1 1/4lbs and has been off of full feeds for over a week now. As of this afternoon the doc has put him back on full feeds, with a pedialyte bolus between feedings. Hoping that will atleast keep him hydrated. He had PT today and has definitely lost a few of the skills that we were beginning to work on. He also met with the ENT today. They did a basic nasal scope and said all looks good there. The ENT and pulmonologist will be getting the rigid and flexible broncoscopy schedualed as well as the PH probe. The ENT is unsure yet about Eli's lack of verbalizations, and PT and speech are going to at this time continue working to get Eli to begin using sign language. Once he can wave, they will really begin to push signing with him.

I don't know what else is coming up this week so far. I know there is stuff, but I honestly don't remember what. Right now with Eli being so sick it's really been a day by day kind of thing. I will try and get updates and pics up soon!

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