Today was little mans MRI. They were late getting his IV and getting him switched over to fluids. So his J feeds ran pedialyte until 1 hr before the sedation. The anesthesiologist came and talked with me for quite a bit discussing how he wanted to run the procedure in light of the Mito. He decided to do a full general anesthesia with intubation. Eli did suprisingly well. He's been really sleepy the rest of the day and has had quite a few day time O2 dips but nothing compared to how he usually reacts to anesthesia.
We met so many people today who were shocked over the Mito diagnosis. I got many questions and wow we haven't seen someone with it, and i heard about it in school and all that. A bit bothersome when people are so fascinated by actually meeting someone with a disease that isn't common.
anyways i'm sleepy tonight so more soon.