Wednesday, July 7, 2010

Motility Specialist

It's been a long tiring day. This morning we spent some time at Science City at Union Station. It was super cool and Tiff and I had fun playing around, Eli hung out watching! :)
Then it was off to Children's Mercy. We had lunch there and headed to his appt. We met with 3 nurses, the nurse practicioner and the doc. We were both really impressed with the doc. That's the good news. The bad news is we have no more information. He is unsure what's causing this, and it could be multiple different things, ranging from full esophogial motility to a problem or constricture in the esophogus. He is wanting all of the CD films from all of the swallow studies and then he wants to run a scope, and a few motility test. These will both be done here in KC at CMH in the OR. They will get them schedualed and call me. He still agrees with the NPO. :( If it is the motility, which the docs in Wichita think it is, then there is in fact no cure. SOOOO. We are basically still at square one. We don't have definitive answers. I sooo hate being at this point.
This evening we headed to the Plaza and had dinner at the Cheesecake Factory. Tiffany had been there before, but not me. HOLY COW. Our dinners were super yummy and we were both so full we had to get our cheesecakes to go and we also got the boys each a piece of cheesecake to take home to them! :)
Now we are going to curl up and watch a movie and eat our cheesecake! :)
More updates tomorrow!

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