I don't have alot of time for a full update but just wanted to come on and hit the big new info.
We got the call today. Eli's paperwork is done, insurance approvals finished, referrals in place. Dr Shoffner agrees and wants to move forward.
Eli heads to Atlanta on April 4th. He will meet with Dr Shoffner on April 5th and have metabolic testing. Then on April 6th he will have his muscle biopsy and spinal tap. I can't believe this is happening. It's a whirlwind of feelings and emotions right now.
Calls are already being made to get flights and lodging figured out. I will update more as we know more.