Sunday, November 8, 2009

Jace and Ben updates

Jace had his surgical procedure done on Thursday. He did well, and came out of anesthesia so much easier this time than in the past so that was great as well. She checked out the esophogus, stomach, and small intestines. All looked good, and she took tons of biopsy's from each area. We will obviously not have those results for a few days. His valve is finally closing on it's own so that is also very good as well, as at his last testing it wasn't. She thinks we are dealing with CVS. She is keeping him on his prevacid, but lowering it to once a day, and she is adding another new medicine to help with the CVS. Before starting his new med, he needed to have an EKG and we go those results back late Friday, and they were good. So we will start the new med tomorrow. We went down to the 1 prevacid a day and the throwing up has already restarted so we are hoping the new med will situate quickly.

Benjamin has been a disaster. He has gotten a hold of crayons, pencils, pens, emilys nail polish, lipstick, and a glue stick and completely demolished his bedroom and 2 bathrooms. He completely covered the bathrooms and 1 of Ari's toys in water. We can't figure out where he keeps finding all of these things and what to do about it. It's a constantly struggle with him and he's constantly getting everything and destroying everyone's things. Then last night he pushed Ariana down the stairs and turned the lights off on her. She of course wasn't thrilled. Today Bob and I decided we needed to AGAIN rearrange the bedrooms so Ben would have minimal things and was where he could be supervised constantly. We were upstairs getting a few things done and kept smelling something burning. We all started roaming around the house trying to figure out what was going on. Ben had taken a huge wool pom-pom and had thrown it on the 100 watt light bulb underneath the lamp shade. It of course was on fire. Luckily we found it before it was able to spread any more to the entire rest of the living room. We are going to have to be calling EVERY one of Ben's workers tomorrow, as we need help. We've got to figure out what to do. I can't keep following him around constantly, and having him hurt people and potential endanger the entire household. I'm just losing my mind dealing with the constant problems with Ben, and so is everyone else in the household.

1 comment:

CNH said...

I'm so sorry Heather. This must be incredibly difficult. :(