Wednesday, December 28, 2011

Wednesday ( I think)

days are running as a blur at this point.  Here are a list of facebook posts for the day to atleast keep those people updated that aren't on facebook but do read my blog!

Morning resident rounds have finished up. Eli's right lung is sounding worse and he's wheezing and secretions are sooo sooo thick. Neurologically something is still very deeply off. Pain is controlled until he's touched or moved. Fevers still. They are calling in Eli's pulmonologist and neurologist for consults today. We appear to still be missing something, but unsure what. We will update today as we know more. All of the thoughts, prayers, texts, posts, and emails are greatly appreciated!!!! Thank you!

docs all rounded. pulm was called and they came by. Waiting on neuro. The did critical labs to check his blood gas. pulm thinks we need to back down greatly on robanul, adding a new med, and is thinking bipap full time is needed. He's concerned on how thick the secretions are. Also breathing is wearing eli out so bad. he's still dehydrated although he's getting almost double his fluid needs. we are waiting on neuro as everyone agrees he isn't neurologically normal. Also we are losing the IV so they want to put in a midline, which is like a picc line. So they are calling hemoc to discuss the risk of clots and what we need to do to prevent. Eli has opened his eyes once or twice briefly, still having alot of pain response to movements and touch, and hasn't peed since 6am.

Vascular access is getting ready to run a midline, which is like a picc line but doesnt go all the way into the chest. Lasts 1-2 weeks but can be rethreaded to make into a picc. Hemoc wants lovenox restarted. :( With the line and eli refusing repositioning because of pain we will now go on lovenox injections BID. They are starting IPPB as well and hoping that will help him some with his breathing. They have also started J feeds at 10ml/hr to see how his body will handle. Still waiting on Neuro.

Intermittent Positive Pressure Breathing (IPPB). how it was explained to us is that it is like a bipap concept where it will help push special meds and breathing treatments down into his lungs which opens things up deeper helping to get more meds in there better and can also help push out and break up some of the pneumonia. He gets his first one here in a few so I will have a way better answer after actually seeing it in action. :

Resting earlier this morning


his brand new midline in his right foot.  They got it on the  1st stick!!!!
And lastly in news the oldest 4 kiddos have headed for a mini vacation in Wichita with my parents.  My parents have been up here over Christmas but have taken the kids back there for a few days.  The kids will enjoy a mini break away!
More updates later this evening!


Anonymous said...

Many, many prayers for Eli and your whole family are continually being sent your way! Continue to fight Tiny Many!

~Linda Loney

Anonymous said...

I am thinking and praying for Eli constantly. It is so unfair that such a little guy has to go through so much. Praying that the drs can find out what is going on and that Eli can rest comfortably.

Anonymous said...

We are complete strangers to you and your family, although we know mito...

We just want you to know that we are thinking of Eli and keeping him in our daily prayers.

The Ebert family

Lynne said...

A friend mentioned you and posted a link to your blog over on Facebook. Please know you are in my thoughts.

Suesan said...

Our thoughts and prayers are with you and your family as your little man continues his brave fight. We pray the doctors find the reason for the pain, and your little man gets better.

The mom of 4 monkeys! said...

Prayers being sent up for Eli and your family...