Eli got his 1st synagis yesterday. He had to get 2 shots. He wasn't super thrilled but did pretty well. He ran a bit of a low grade last night, but gone this morning. We've kept him pretty low key and around the house these last few days. This morning he's hanging out rolling around a bit, getting tired pretty quickly which has been a constant concern. Hoping after a nap we can work a bit on signing. Jen is here today with him, trying to get his chart organized for the upcoming week. He's gained a touch of weight, but still down from where we were a week ago. This next week will bring some new OT and speech work and a huge push on signing. So many phone calls have been made and so many people have been talked to. It's all such a blur.
I'm exhausted and I'm a bit numb. Most days it's getting thru it. I try not to think to much about what is actually going on. Sometimes that's hard to do though.
We met a new tubie friend LOCALLY. Eli was at his ENT and as we were leaving I saw another little boy with a tubie backpack. I of coursed went right to the mom and talked to her. It was awesome. I couldn't believe it. We have exchanged info and already talked on the phone. She was able to get us into the best neurologist in town!!! We were on an 8 month waiting list and she got us in next month! We are super excited! We are going to be calling our cardiologist to get her a fast appt on monday! :) Can't wait to get to know their family more!
The oldest 4 are at swimming lessons this morning. They love saturday mornings. Then it's off to the grocery store and we will be doing some baking this afternoon! Yummy!
More updates and pics soon!
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