Wednesday, April 6, 2011


We got into atlanta late monday evening.  Our flight was delayed out of denver due to storms in atlanta.  It ended up being a 12 hour trip.  Eli did really well and his oxygen stayed on the whole flight with no issues.  We got to the ronald mcdonald house and crashed early. 
Tuesday eli had his resting metabolic rate done.  He did really well with it.  There is a picture of it with this post.  Then we headed to dr shoffners office.  It was like meeting santa.  We talked quite awhile with him.  It was so nice talking to a doctor who actually understand what we are going thru.  Plans were made to add some additional tests to the surgery as well as setting all the anesthesia protocol.  Then eli had his pre surgery appointment at childrens at scottish rites.  Again lots of talk on following strict mh and mito precautions with anesthesia.
After all of our appointments we went out to dinner with an old friend of mine and her family.  It was so great to reconnect and spend the time together.  We are at cheesecake factory and ended up talking until after 10 pm.
This morning we slept in and had a lazy breakfast.  We are now at scottish rites waiting for vascular access, anesthesiologist, and the surgeon.  We will update today as we know more.
As always thank you to everyone for all the love and support.

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