Tuesday, January 24, 2012

Super Quick Update

It has been a fairly slow few days.
The weekend was a bit rough, as they boys were in a mood. It makes for a hard few days.
Monday was NICE. My friend picked me up and we spent 4 or 5 hrs going to tons of thrift stores digging and searching for treasures! I found some cool things and had a great time getting out and about!
Today has been a bit off. Eli had a weird night and the day has continued that way. His heart rate has been high, and his GI system is still very thrown off. His sugars have been decent today but he's flushed and exhausted. He napped over 4 hrs and has still been tired this evening. I have a call into his Geneticist/Mito doc and hoping to get some more info from him. Eli also lost weight again, which simply doesn't make sense. I will update as soon as I hear back from the doc!

Emily found out at the end of last week that she was chosen to be in the 5th Grade All District Honors Choir! She will be performing at a concert at and all district assembly the beginning of February. She's super excited and we are all excited for her!

Not much is going on with everyone else. It's not been a very info heavy few days!
We are still working on training a nurse, although she is struggling a bit with the stairs and the floor. We still don't have other prospects on nurses. It leaves us pretty close to home right now!

In closing...Comments on my blog are all moderated. I have a few readers who seem to have nothing better to do with their time but harass me. Because of this all comments have to be approved before they are posted. If you sign your name to your comment, it has a higher chance of being published.
Lastly...If you think you can do it better, or if you disagree with how we are doing something, or if you think that we are making things up, feel free to shoot me an email or give me a call and I would be more than happy to set up a weekend for you to come stay with us and follow us around participating in EVERY aspect of our lives. We will then see how easy you believe it all to be.
We 120% appreciate all of the amazing people in our lives and all of the support that we receive from you guys! You all are amazing!

1 comment:

Chelsey said...

I am sorry that you are having problems with people being mean. No one should have to put up with that with all that you are going through. One of my friends was updating your story on fb so I started following your blog. You and your husband are amazing people for being so strong for each and every one of your children. Yes, your story makes me sad, don't get me wrong, but it also makes me happy. You make me realize how strong you must be to be a parent! You show just how dedicated to your children you MUST be to be called Daddy or Mommy. You also have shown me that EVERY life is a gift, and yes that does mean that the gift CAN be taken away. This shows that you have to enjoy every little minute that you get. No matter how bad things get, you need to find the good in it. I know you are going through so much, but I could just not stop myself from telling you " You are WONDERFUL! Thank you for sharing your story! " -Chelsey