I've been behind on updating as I've been pretty sick. I've been having migraines daily. They are there when I wake and when I fall asleep. My eye sight has been struggling as well as my hearing. I've had facial and eye twitches. I can no longer lay on or touch the back of my head. My ears hurt to the point where I can hardly talk on the cell phone without them throbbing. They put me on meds that made me even sicker. I've been to the neurologist and the family doc. They did an EMG and discovered that I have severe carpal tunnel with sensory nerve, motor nerve, and muscle damage. They scheduled me for surgery November 2nd.
Then they did neck xrays. They saw some issues with arthritis at the base of my neck. Next they did an MRI of my brain and neck. This was on Tuesday.
My doctor called me today with results. She apologized 10 plus times while giving me the results. I listened and wrote notes as she talked. Then cried and cried and cried.
I have an Arnold Chiari Malformation. She is sending me to a neurosurgeon for surgery on my brain and spinal cord. I'm terrified.
I feel as though I'm being crushed. I have felt my strength wavering over these last few months as we've gone farther down the road of Mito with Eli but this is more than I can bare.
We told our kids tonight and our immediate family. I simply don't have the strength to call everyone so please don't be offended if you weren't on the list of people we personally spoke with. I just can't say it outloud that many times right now.
I don't know how we are going to make it thru, but I know that my friends and family are amazing and I know that they will drag me kicking and screaming thru this.
Feel free to text, call, email, drop by, or whatnot. We know that we need the support of everyone around us.
I just don't know if I can do this.
I will get more updates up on Sunday.